About Us
We assist care centers in becoming Accredited Duchenne Centers.
Become part of the unique development of a worldwide accreditation for Care Centers for Duchenne Muscular Dystrophy.
Worldwide accreditation for Duchenne care centers.
The Accredited Duchenne Centers Program aims to develop a unique worldwide accreditation for Duchenne and Becker Muscular Dystrophy care centers.
Aim
Accredited Duchenne Centers for pediatric and/or adult care are providing multidisciplinary care according to the latest Care considerations.
Guidance and support
The ADC Program provides training regarding optimal Duchenne care and advice for Duchenne centers who can not -yet- fulfil the criteria for accreditation.
Continuous training
For Accredited Centers, continuing education and training will be provided, including modules about latest research insights and gene therapy readiness.
Accredited Duchenne Centers Program
A collaboration by
The Accredited Duchenne Centers Program is a program by the World Duchenne Organization. The program will be supported by Duchenne Data Foundation.
Step 1: Application
Centers interested to become an Accredited Duchenne Center (ADC) can apply via the ADC website, completing the documents.
Step 2: Evaluation
A digital questionnaire determines whether centers comply with the criteria, before a visitation can be planned.
Step 3: Visitation
A visitation is scheduled and performed. Semi-structured interviews are conducted with professionals and patients/parents.
Step 4: Accreditation
In case of a positive review, the center becomes an Accredited Duchenne Center and receives ongoing training and education.
Testimonials
What Accredited Duchenne Center experts say
Read the experience from previously Accredited Duchenne Centers.
We pleased to announce the launch of the Accredited Duchenne Centers Program. This global program is part of the unique development of a worldwide accreditation for Duchenne Centers.
Prof Imelda de Groot
Program Leader, Accredited Duchenne Center Program
We need to ensure that wherever they are in the world, people living with dystrophinopathy can benefit from the best care possible. The ADC Program is a great step forward in achieving this ambitious goal.
Elizabeth Vroom
Patient Representative, World Duchenne Organization
Accredited Duchenne Centers Program
Advisory Board
These experts join the international multidisciplinary Advisory Board to develop a worldwide accreditation for Duchenne centers for pediatric and/or adult care.
Prof Nathalie Goemans
BELGIUM
Advisory Board Chair
Prof Susan Apkon
UNITED STATES
Advisory Board Member
Prof Alberto Dubrovsky
ARGENTINA
Advisory Board Member
Dr Teresinha Evangelista
FRANCE
Advisory Board Member
Dr Agneta Golan
ISRAEL
Advisory Board Member
Prof Juliana Giannetti
BRAZIL
Advisory Board Member
Dr Jana Haberlova
CZECH REPUBLIC
Advisory Board Member
Dr Erik Henricson
UNITED STATES
Advisory Board Member
Prof Eugenio Mercuri
ITALY
Advisory Board Member
Prof Ros Quinlivan
UNITED KINGDOM
Advisory Board Member
Prof Karim Wahbi
FRANCE
Advisory Board Member
Collaborations
The ADC Program receives support.
We are grateful for the support of the following organizations
Accredited Duchenne Centers Program
Latest News
Read the latest updates on the global accreditation of Duchenne centers.
Apply to become Accredited Center
Applications to become an Accredited Duchenne Center are now open. Register your interest by completing the registration form.