About the ADC Program
The program is set up to improve the standardization of optimal Duchenne care around the globe.
Become one of the first centers to receive accreditation for providing care in line with the Care Considerations.
Worldwide accreditation for Duchenne care centers.
The Accredited Duchenne Centers Program aims to develop a worldwide accreditation for Duchenne Muscular Dystrophy care centers.
Aim
To make sure that Duchenne centers for pediatric and/or adult care are providing multidisciplinary care according to the latest Care considerations.
Procedure
After an online pre-screening, the selected centers receive a site visit by international Duchenne experts to examine whether centers provide care according to the latest Care considerations.
Training about care
For Accredited Centers, continuing education and training will be provided through the Duchenne Care Conference, and will include modules about latest research insights.
Accredited Duchenne Centers Program
A program by
The Accredited Duchenne Centers Program is a program by the World Duchenne Organization.
Step 1: Application
Centers interested to become an Accredited Duchenne Center (ADC) can apply via the ADC website, completing the documents.
Step 2: Evaluation
A digital questionnaire determines whether centers comply with the criteria, before a visitation can be planned.
Step 3: Visitation
A site visit is scheduled and performed with international experts. Semi-structured interviews are conducted with professionals and patients/parents.
Step 4: Accreditation
In case of a positive review, the center becomes an Accredited Duchenne Center and receives ongoing education.
Testimonials
What Accredited Duchenne Center experts say
Read the experience from previously Accredited Duchenne Centers.
We pleased to announce the launch of the Accredited Duchenne Centers Program. This global program is part of the unique development of a worldwide accreditation for Duchenne Centers.
Prof Imelda de Groot
Program Leader, Accredited Duchenne Center Program
We need to ensure that wherever they are in the world, people living with dystrophinopathy can benefit from the best care possible. The ADC Program is a great step forward in achieving this ambitious goal.
Elizabeth Vroom
Patient Representative, World Duchenne Organization
Accredited Duchenne Centers Program
Advisory Board
These experts join the international multidisciplinary Advisory Board to develop a worldwide accreditation for Duchenne centers for pediatric and/or adult care.
Prof Nathalie Goemans
BELGIUM
Advisory Board Chair
Prof Susan Apkon
UNITED STATES
Advisory Board Member
Prof Alberto Dubrovsky
ARGENTINA
Advisory Board Member
Dr Teresinha Evangelista
FRANCE
Advisory Board Member
Dr Agneta Golan
ISRAEL
Advisory Board Member
Prof Juliana Giannetti
BRAZIL
Advisory Board Member
Dr Jana Haberlova
CZECH REPUBLIC
Advisory Board Member
Dr Erik Henricson
UNITED STATES
Advisory Board Member
Prof Eugenio Mercuri
ITALY
Advisory Board Member
Prof Ros Quinlivan
UNITED KINGDOM
Advisory Board Member
Prof Karim Wahbi
FRANCE
Advisory Board Member
Dr Jarod
Wong
UNITED KINGDOM
Advisory Board Member
ADC Program
Initiated by World Duchenne Organization
The Accredited Duchenne Center Program is an initiative by World Duchenne Organization.
Accredited Duchenne Centers Program
Latest News
Read the latest updates on the global accreditation of Duchenne centers.
Apply to become Accredited Center
Applications to become an Accredited Duchenne Center are now open. Register your interest by completing the registration form.