Amsterdam, 17 February 2023 – World Duchenne Organization is thrilled to announce that the applications for Duchenne Centers Accreditation are now open. The Accredited Duchenne Centers Program is designed to achieve worldwide uniform and up-to-date care for everyone living with Duchenne muscular dystrophy.
Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines. The program is initiated by the World Duchenne Organization.
Applications for Duchenne Centers Accreditation can be submitted at the ADC website. To be eligible for application, Duchenne centers must provide multidisciplinary care, which may be delivered either by one center, or shared with other locations. However, the applying center is responsible for the care plan, coordination, communication, documentation and collaboration. A letter of support from the national patient organization is part of the application process. There are no costs associated with applying for accreditation.
After registration, centers will receive a link to a digital questionnaire to determine whether they provide care according to the screening criteria for children and/or the screening criteria for adults.
The ADC Program supports uniform care, optimal patient experience and global recognition. An educational program is part of the worldwide ADC Program.
For inquiries, please contact Merel Jansen, PhD, Program Manager of the ADC Program at merel.jansen@worldduchenne.org.
About World Duchenne Organization
The World Duchenne Organization is the global umbrella organization of 50 national patient organizations from 38 countries. We are committed to finding a cure and viable treatments for DMD and BMD, promoting care considerations and consensus guidelines, and informing parents and people living with the condition around the world.
